Hi reader,

Monday, 10th of December 2018

On the eve of the second EU summit on digital innovation for active and healthy ageing, the i-PROGNOSIS consortium keeps working on the development of a new application through which users will contribute to improve the early detection of Parkinson’s disease. Technology-based solutions are booming in the medical field, especially given their potential with regard to self-health management. Yet to get everyone on board, specific attention will have to be paid to the accessibility of these digital innovations. The i-PROGNOSIS partnership is committed to building a community as large and representative of society as possible.

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O U R   N E W S

Anthony Mule Stagno

Tony: "I was surprised with all the symptoms targeted in i-PROGNOSIS"

Anthony Mule' Stagno is a 76 years old pensioner. He was diagnosed with very early Parkinson's disease three years ago. As a technology-savvy, he is very much willing to contribute to the i-PROGNOSIS project.    Could you introduce yourself in a few lines? I am 76 years old, married with 2 sons and 2 grandchildren. I am retired… sort of! Because …

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Challenges of Improving Patient-Centred Care in Parkinson’s disease

A new study in the UK suggests that a measurement tool supporting a patient-centered care model would be a combination of objective and accurate measurement of the most bothersome symptoms for patients towards the end goal of improving patients’ quality of life. Of several clinical scales used to measure patient experience few are delivered by patients themselves. Based on this fact, a …

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Photo by Jason Howie / CC BY 2.0

Good practice guide for health apps

The French High Authority for Health launched this November a guide with the aim to offer a development framework ensuring the quality and reliability of health applications. Facing the risks ensuing from the rapid development of health applications, the French High Authority for Health designed and published with the support of the French Data Protection Authority (CNIL) this guide composed of 101 …

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A new European partnership in the field of digital inclusion

ENTELIS is the name of a a new European partnership for learning and innovation in the field of digital inclusion which was launched during the third ENTELIS project seminar in Brussels on 19 October. The partnership is the result of three European umbrella organisations (EASPD, AAATE and EVBB) joining efforts to better support their members working for the empowerment of people …

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Photo by Simon Fraser University / CC BY 2.0

Launch of a new study to profile Parkinson's variability

"The disease symptoms, disease progression, and treatment response in Parkinson’s disease vary considerably among patients. Currently, we don't understand what causes these differences and therefore we cannot offer patients a treatment plan that is tailored to their individual needs. New insights are urgently needed," said Bastiaan Bloem, M.D., Ph.D., Professor of Neurological Movement Disorders and Founder of ParkinsonNet. Based on …

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Towards Early Detection of Age-Related Health Risks workshop

i-PROGNOSIS participated in the Towards Early Detection of Age-Related Health Risks: Understanding users' needs, unobtrusive sensing and data analysis workshop organised by European Commission on October 4, 2016 in Brussels. During the workshop, all PHC-21 projects (i-PROGNOSIS, FrailSafe, PreventIT, REACH, my-AHA, City4Age) were presented and open discussion took place regarding future challenges in collecting, storing, using, sharing and analysing data …

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M O R E   U P D A T E S

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