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i-PROGNOSIS Newsletter #14: Sustaining the quality of life of people living with Parkinson’s

23rd of October 2019

Sustaining the quality of life of people living with Parkinson’s

Hi reader,

i-PROGNOSIS is officially kicking-off the last major study of the project with a series of interventions that will monitor the health outcomes of new supportive interventions for about 60 persons living with Parkinson’s in Germany, Greece and the UK.

The iData study will be looking at novel approaches to sustain the quality of life of potential or early stage Parkinson’s patients. Epidemiological studies have proven that early intervention could have a positive effect and i-PROGNOSIS is in this context looking at the impact of serious games. In the long term, the aim is to complement the PD specialised physio-, occupational and speech therapy with e-health-supported therapies to empower people living with Parkinson’s.

The 14 games composing the Personalised Game Suite address various symptoms of the disease and can be performed at home or in special ‘Game Stations’ at the clinics. They will be tested over four months with patients living in Dresden, Thessaloniki and London. Three medical assessments taking place at the beginning, the middle and the end of the four-month period will allow to assess the acceptance and compliance of the e-health-supported interventions.

Studies to increase our understanding of early onset Parkinson’s and eating behaviour changes as the disease progresses are still ongoing. It is now also possible to donate your data from Chile: a big muchas gracias to our Chilean ambassador Dr. Pedro Chana for his support! Preliminary analysis reveals that higher clinical tremor scores, fewer number of mouthfuls during the meal and shorter meal durations could be important factors related to this difference.

You want to team up with i-PROGNOSIS partners and start discussing the next steps we will take after the project ends? Come and meet us at the next events where we participate or contact us!

Keep spreading the word about our early detection app! Data collection to help us refine algorithms screening for Parkinson’s early symptoms will keep going until October 2019. Download the iPrognosis mobile application for free on Google Play Store in Austria, Australia, Germany, Greece, Portugal, Spain and the UK. Now also available in Chile!

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OUR AMBASSADORS

Our Spanish ambassador Prof. Fermín Mallor, University Professor in the Department of Statistics and Operational Research of the Public University of Navarra, shared with us his interest in Parkinson’s research, why he decided to support i-PROGNOSIS’ research and how he thinks other areas of research might benefit.

Interview in English  |  Entrevista en español

Join our network of ambassadors and participate in a social initiative that aims to improve the wellbeing of our ageing population and accelerate the advancement of science.

Read our call for ambassadors →

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OUR NEWS

i-PROGNOSIS Games

 

iPrognosis starts its intervention study (IData study)

The third major study of the project that will evaluate technical solutions developed during the project, which are aimed at sustaining the quality of life of patients with Parkinson's. 

Read more.

Photo of Sofia Balula Dias

 

i-PROGNOSIS Personalized Game Suite (PGS): Insights from i-PROGNOSIS partner Dr. Sofia Balula Dias

Our partner Dr. Sofia Balula Dias, Faculdade de Miotricidade Humana (FMH), University of Lisbon, Portugal, provides us with insights on the i-Prognosis Personalized Game Suite (PGS). 

Read more.

Eating behavior in Parkinson’s patients – intermediary results

 

Eating behavior in patients with Parkinson’s

– intermediary results 

In the context of i-PROGNOSIS, Karolinska Institute (KI), the Technical University Dresden (TUD) and the Aristotle University of Thessaloniki (AUTH) conducted a pilot study exploring the eating behaviour changes in Parkinson’s Disease patients. 

Read more.

PD-Community learning about i-Prognosis at King’s College London!

 

PD-Community learning about i-PROGNOSIS at King’s College London!

Our i-PROGNOSIS partner King’s College London (KCL) organised a meeting on 17 July 2019 to disseminate information and educate the Parkinson’s Community and their carers on i-PROGNOSIS. 

Read more.

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EVENTS

i-PROGNOSIS partners will attend and contribute to several events across Europe and beyond in the next few months. If you want to meet up with our researchers and try out some of the i-PROGNOSIS solutions, come visit us at one of the events below!

International Congress of Parkinson’s Disease and Movement Disorders (22-26 Sept. 2019)

 

International Congress of Parkinson’s Disease and Movement Disorders (22-26 Sept. 2019)

The International Parkinson and Movement Disorder Society (MDS) is organising the International Congress of Parkinson’s Disease and Movement Disorders® in Nice/France 22-26 September 2019. Our i-PROGNOSIS partners got two abstracts accepted for poster presentation …

Read more.

EXPO Science is Wonderful! (25-26 Sep 2019)

i-PROGNOSIS will be presenting its research to the public during the EXPO Science is Wonderful! on the 25 and 26 September 2019 at the Kanal in Brussels, Belgium. Free and open to everybody, Science is Wonderful! brings the world of science to the public. 

Read more.

Nutrients 2019 (25-27 Sep. 2019)

Nutrients 2019 – The Nutritional Advances in the Prevention and Management of Chronic Disease conference is organized by the open-access journal Nutrients and will be held as a three-day event in Barcelona, Spain, from September 25‒27, 2019. 

Read more.

MEDICA 2019 (18-21 Nov 2019)

Our i-PROGNOSIS partner Fraunhofer IAIS will participate at the MEDICA exhibition, taking place November 18 - 21 2019 in Düsseldorf, Germany. 

Read more.

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PRESS MENTIONS

With its recent launch in Chile, i-PROGNOSIS was heavily featured in the Chilean press, including a radio-interview with our local ambassador Dr. Pedro Chana. Check out the many press review articles from Chile and give a look at what media outlets in European countries have reported about i-PROGNOSIS over the summer.

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Social media

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