“The disease symptoms, disease progression, and treatment response in Parkinson’s disease vary considerably among patients. Currently, we don’t understand what causes these differences and therefore we cannot offer patients a treatment plan that is tailored to their individual needs. New insights are urgently needed,” said Bastiaan Bloem, M.D., Ph.D., Professor of Neurological Movement Disorders and Founder of ParkinsonNet.
Based on this fact, a consortium of medical and technical partners gathered in the Netherlands with a view to examine the disease, its origins and progression over the course of two years.
The study will uses wearable devices with sensors to measure various types of data at PD patients’ home (vital signs, activity level, etc.) thanks to the Alphabet company Verily.
Research data will be securely stored and shared with researchers using an advanced method called PEP (Polymorphic Encryption and Pseudonymisation). Parkinson’s researchers from other countries can also be granted access to the collected data after submitting a research proposal.